Global Genes Raises Funds for WAM!

Global Genes, a rare disease rare disease advocacy organization, is helping to raise funds for WE ARE MORE! at Disneyland through the Carousel of Possible Dreams event on Wednesday, November 9. WE ARE MORE! is a newly formed organization and advocacy group for teens with rare disease. Founded by Newport Beach's 17-year-old, Shira Strongin, WAM! aims to connect the rare disease community and empower young adults to change the perception of illness and rare disease in mainstream media.

Following the Global Genes’ 2015 annual RARE Patient Advocacy Summit, Strongin met with other young adults in attendance to discuss the challenges of teens with rare disease. The group brainstormed and shared ideas about how they could empower others to become activists for the rare teen community. “We want to show that just because our illnesses and disabilities are a large part of our lives, they are most definitely not all that we are and strive to be,” said Strongin. WAM! is an advocacy group open to interested members 13-25 years of age.

Global Genes has a goal of raising $15k for WAM! through the event and is already half way there! You can get involved here through donating or joining the team.