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RARE in the Square

01.09.17

Orange County based Global Genes, a leading global advocacy organization for rare disease, is making great strides today for the rare disease community. It’s holding its first-ever RARE in the Square (RITS) today through January 11 at Union Square in San Francisco.

The inaugural RITS coincides with the JP Morgan's Healthcare Conference (JPM), creating the opportunity for rare disease focused companies and organizations to network at the conference epicenter in a one-of-a-kind space. Rare diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally.  Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes - so this event is a huge win for the rare disease community.

“Rare disease has become an important area of investment in healthcare, with an annual growth rate nearly double the general drug market, some important treatments reaching the market just last year, and even more progress anticipated in 2017,” said Nicole Boice, CEO and Founder of Global Genes. “We are bringing rare disease companies, investors and patient communities together at RARE in the SQUARE to celebrate advances, and to foster new connections that will be the basis for future innovations for the thousands of other rare diseases in need of treatments.”

Staging the conference at Union Square is a great way to bring awareness, network and remind everyone how much more work is needed.

You can find out more about RARE in the SQUARE and how to get involved, at GlobalGenes.org/rareinthesquare.

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Alzheimer’s Women’s Initiative Breakfast

01.06.17

Nearly 13 million women are living with Alzheimer's or are caring for someone who has it. You can join women leaders forging the way to a world without Alzheimer’s disease on Friday, January 13 from 8:30 to 10 a.m. at the Center Club in Costa Mesa.

The Alzheimer’s Women’s Initiative Breakfast & Public Policy Discussion will feature local and national researchers as discussing how women are impacted by dementia, and you can learn about important breakthroughs in research, care and support. The keynote speaker is Keith N. Fargo, Ph.D., the Director of Scientific Programs & Outreach at Alzheimer's Association.

Cost is $20 per person. You can register online here, or call 949.438.3849 for more information.

The Center Club is at 650 Town Center Drive in Costa Mesa.

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