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Global Genes 6th Annual RARE Tribute to Champions of Hope

09.08.17

Global Genes 6th Annual RARE Tribute to Champions of Hope returns September 15-16, culminating to Saturday nights award show with live entertainment and amazing presentations at the Grove of Anaheim.

The annual blue carpet events honor and celebrate rare disease advocates, scientists, patients, and supporters and the important work that they are doing to advance efforts for rare disease globally.

This year’s events will present another star-studded weekend of multiple celebrity guest appearances in support of rare disease including Parks and Rec star Jim O’Heir, star of MTV’s Awkward Jillian Rose Reed, Scout Compton from Nashville and Halloween 2, and Karan Brar from Disney Channel’s Jessieand Bunk’d​.

Global Genes ambassador and rare disease advocate, Madison McLaughlin, actress from CW’s Arrow and Supernatural, will host the Friday night Champion of Hope award show. Madison strives to create awareness, raise funds, and form a community for those affected by rare disease like her three sisters diagnosed with HBSL. Co-host of 104.3 MYfm’s Valentine in the Morning, Jillian Escoto, will host the Saturday night Tribute award show. Jillian is active in supporting The National Multiple Sclerosis Society after being diagnosed with MS in 2008.

The Tribute award show will kick-off with a performance by 8-year old singer Gavin Stevens, who touched hearts across America with his performance on NBC’s Little Big Shots. Season 12 contestant of NBC's The Voice, Stephanie Rice, will perform; and viral sensation, patient advocate, and award honoree, Sparsh Shah, will join the line-up of entertainment with his inspirational musical performance and motivational message, that will impact everyone in attendance. To purchase tickets to the Tribute visit globalgenes.org/2017tribute.

The 6th Annual RARE Patient Advocacy Summit will take place prior to the Tribute to Champions of Hope September 14 – 15 and is an educational conference offering a space for members of the rare disease community to learn, share best practices, create important connections, and help catalyze powerful collaborations, all in an effort to support forward movement in rare disease.

To register to attend the Summit please register at globalgenes.org/2017summit.

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MaxLove Project’s 3rd annual “Farm to Fork Dinner”

09.07.17

MaxLove Project—an Orange County nonprofit dedicated to improving the lives of child cancer survivors and their families—will celebrate their third annual “Farm To Fork Dinner” on Saturday, Sept. 23 at 5 p.m at Tanaka Farms in Irvine.

The Farm to Fork Dinner is a farm-to-table dining experience, serving MaxLove families and community members. The evening features Happy Hour with handcrafted cocktails, a 4-course family-style dinner showcasing seasonal, locally-sourced ingredients prepared by Chef Azmin Ghahreman of Sapphire Laguna, and an after-dinner lounge with dessert and live music.  

Farm to Fork features the culinary talents of Ghahreman, who has been committed to childhood nutrition throughout his career, launching “Sapphire at School” in 2008, a lunch program that prepares fresh, wholesome meals for over 4,000 O.C. students daily.

“What Maxlove Project is doing is a groundbreaking effort to teach patients and their families how choose better diet and nutrition by educating all involved,” Ghahreman said. “As a culinarian it is my job to facilitate this need. After all ‘food is medicine.’”

Though tickets, $100, are still available to the “App-Off” portion of the event (where several Orange County “MaxLove Project Gold Apron Society” chefs will share their farm fresh starters), tickets to the dinner have SOLD OUT more than a month ahead of the event for the first time in its short but powerful run.

Last year, Farm to Fork Diners raised $206,000 to combat childhood cancer and aid survivors. MaxLove Project’s inaugural Farm to Fork Dinner in 2015 raised $35,000 to benefit children’s cancer survivorship research and support programs; the event is the organization’s largest annual fundraiser.

Sponsors and MaxLove supporters include: Lily’s Sweets Sugar-Free Chocolate (presenting sponsor); Tanaka Farms; Sapphire Culinary Group; Zov’s Restaurants; Haven Gastropub; Electric City Butcher; Eilo; Putnam Accessory Group; Straub Distribution; The Hunt Collection; Newport Meat Company; The Recon Group; Human Longevity, Inc.; ZSweet; ONEHOPE Wine; Bonterra Vineyards; Tito’s Handmade Vodka; Dr. John’s Sugar-Free Candy; and Lagunitas Brewing Company.

Donations can still be made to MaxLove Project in support of this event. Additional information can be found at mlpfarmdinner.org/

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